Friday, April 10, 2009
Dudley Went To The Doctor Earlier In The Week ...
for his six months check up. The doc advised he is now ready to refer Dudley for some genetic testing to try and get a better handle on the type of muscular dystrophy Dudley is dealing with. The main test they are going to be doing sometime in the next few months is to confirm or rule out if Dudley has Pompe disease. It is a long shot for sure but if Dudley is suffering from this form of muscular dystrophy, that would be good news if you can call it that because this is the only form of md for which there is a treatment currently. The doc says the treatment would not make Dudley any better but he advised it has been shown to stop the progression of the disease in it's tracks. Of course Dudley's health insurance company would not be thrilled to hear of such a diagnosis as the cost of the treatment is $25,000.00 per month or $300,000.00 per year! The doctor has assured Dudley that he can get his insurance to pay for the treatment if it is indicated by the tests. It sure would be nice to have some good news for a change. Time will tell.JDP
JDP
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